?

Log in

testing was negative - Against the grain [entries|archive|friends|userinfo]
Against the grain

[ userinfo | livejournal userinfo ]
[ archive | journal archive ]

testing was negative [Aug. 16th, 2012|10:07 am]
Against the grain

food_allergies

[mooselover13]
[Current Mood |aggravatedaggravated]

I just wanted to post and update and vent a bit. I took the blood test for celiac and the results came in negative. My dr seems to think this is the end of the story, which I find hysterical/annoying considering her daughter was recently dx with celiac and I thought she was more knowledgeable about the possible false negatives than this.

I'm frustrated because I was just going to go gf regardless of the results and only wanted to have it "on the record" for insurance and to get my family to stop side-eyeing me about the need to be gf. But it's been over a month since I stopped going gf and now I'm second guessing myself. I was thinking i'd do a 2 month gf trial this time, and this time i'd also keep a consistent food/symptom/emotions log to determine if there's any change, but I'm starting to think maybe I'm just crazy to be thinking this at all considering howmuch of a PITA going gf is.

Can someone help me take a reality check? The only significant difference I can remember from gf to not-gf is that I vascilate now between diahrrea and constipation, and more headaches. But there doesn't seem to be a direct correlation in time between me eating gluten and these instances. Oh, and my weight loss has gone down (I am overweight and been tryong to lose) since I switched back to gluten.

What'cha think?
LinkReply

Comments:
[User Picture]From: yellowitchgrl
2012-08-16 05:13 pm (UTC)
Here's my reality. For years I had nasty, daily headaches and migraines weekly (sometimes more often). I was living on pain killers. I tried everything to get rid of them, nothing helped. In December of 2010 I saw this documentary about a guy who cured his headaches using what he ate and I was desperate so I went on an elimination diet and within 48 hours I was feeling sooooooo much better. I went to see an allergist. No food allergies. Not a one. I do have severe pollen, grass, weed, dust mite, tree allergies, but no food.

I'm not truly allergic because the foods don't kill me or cause serious instant harm, but there is something wrong.

I can't eat wheat, dairy, corn, soy, peanuts, fish, mellons, bananas, and much, much more and if something is not organic it upsets my stomach to eat too much of it. I'm not crazy and I've experimented up, down and sideways. Doctors don't know everything. Trust yourself, and go with your gut.
(Reply) (Thread)
[User Picture]From: mooselover13
2012-08-16 10:43 pm (UTC)
Thank you. I have a friend with celiac and any gluten tears her up. I guess I get caught up in the issue that it doesn't seem to cause disabling pain, and so I should just suck it up. Which is really funny, because my friend keeps telling me I should stick with the gf if it makes me feel better. :)
(Reply) (Parent) (Thread)
[User Picture]From: nessabutterfly
2012-08-17 12:34 am (UTC)
Intolerances don't show up on any tests, but they can still cause pretty severe suffering. My first allergist told me that elimination diets are better diagnostic tools than actual allergy testing anyway.
(Reply) (Parent) (Thread)
[User Picture]From: mooselover13
2012-08-17 01:51 pm (UTC)
I feel more reassured about doing my own testing now. I just expected more something from my dr I guess.
(Reply) (Parent) (Thread)
[User Picture]From: yellowitchgrl
2012-08-17 12:41 am (UTC)
It doesn't have to be huge. Some of my "allergic" reactions are a runny nose or a scratchy throat. Others make my face flush like crazy. Try GF and see how it goes. You may need to cut more things out, but definitely give it a shot and ignore the doctor.

Problem is that mine have steadily gotten worse over the years because I didn't know better. Don't end up like me, nip it in the bud now
(Reply) (Parent) (Thread)
[User Picture]From: mooselover13
2012-08-17 01:53 pm (UTC)
I've done a 4 week trial of gluten and found my gi was much happier. I'm going to go back to gf and also ditch dairy for a few weeks and see how I feel. Plus I'm going to keep a detailed food/mood/symptom diary so I can remind myself of the benefits. :)
(Reply) (Parent) (Thread)
[User Picture]From: happy_just_2_be
2012-08-16 05:28 pm (UTC)
Are you sure it is gluten then? I do feel much better since going gluten free, but the biggest change for me was when I went dairy free. I did test positive to dairy allergy, and after I cut it out my migraines, ibs, and skin issues cleared right up. In other words, have you explored the idea that it could be a different food entirely?
(Reply) (Thread)
[User Picture]From: mooselover13
2012-08-16 10:45 pm (UTC)
I have been, and been considering dairy specifically. The only reason I even thought of this in the first place is that in an effort to lose some weight I'd tried to switch to more natural food, and then realized that I felt much better *and* that I had almost completely removed gluten from my diet. In retrospect I think I hade removed a ton of dairy too (in an effort not to drink my calories) so I'm thinking I'm going to move both of those out.

Thanks!
(Reply) (Parent) (Thread)
[User Picture]From: dulcedemon
2012-08-16 09:53 pm (UTC)
Don't really on others to tell you what makes you feel good or bad.
I can't afford a biopsy or any of that jazz. I have no insurance. If I eat gluten, I crap water, my joints get inflamed, my muscles ache and I get migraines, maybe even a fit of vomiting for my trouble, not to mention the head to toe itching.
Those who can't take me at my word can go to Hell. I'm not going to willingly subject myself to those symptoms for their amusement. Unless they offer to pay for the testing -- As if!
(Reply) (Thread)
[User Picture]From: mooselover13
2012-08-16 10:47 pm (UTC)
I don't have such a storing reaction as you, but you're right that I deserve to feel good. Thanks for the good attitude boost! That's really what I need to be focused on. Thanks.
(Reply) (Parent) (Thread)
[User Picture]From: ldygrinningsoul
2012-08-17 12:44 am (UTC)
Check for a fructose intolerance. My husband tested "not really" for celiac's and still had some issues after we just went ahead and cut out gluten. Also cutting out fructose helped more; apparently they're commonly misdiagnosed in the US.
(Reply) (Thread)
[User Picture]From: mooselover13
2012-08-17 01:55 pm (UTC)
Thanks for the suggestion. :)
(Reply) (Parent) (Thread)
[User Picture]From: tetsubinatu
2012-08-17 04:22 am (UTC)
I tested negative for gluten but my quality of life has really improved immensely since I went off it 15+ years ago. I wouldn't stick with it this long if it didn't! I also cannot tolerate milk, and have been off that for the same period of time. Your health is the ultimate barometer, and I urge you to try cutting out milk products and see if it makes a difference. For me - gluten causes exhaustion, digestive pain and blood in the stools, migraine-type visual anomalies. Dairy causes asthma, constipation, digestive pain, post-nasal drip, mood swings and headaches.
(Reply) (Thread)
[User Picture]From: mooselover13
2012-08-17 01:56 pm (UTC)
I'm going to quit both and keep a detailed journal. I think dairy is going to be even harder than gf though for me because I. LOVE my cheese!! O)
(Reply) (Parent) (Thread)
[User Picture]From: happy_just_2_be
2012-08-17 02:28 pm (UTC)
Daiya cheese is awesome if you are looking for a good substitute! I tried many kinds but this is by far the best!!
(Reply) (Parent) (Thread)
[User Picture]From: mooselover13
2012-08-17 02:43 pm (UTC)
OMG I love you! There is no substitute for having someone else's first hand experience. Thank you!
(Reply) (Parent) (Thread)
[User Picture]From: tetsubinatu
2012-08-18 04:38 am (UTC)
Do you tend to have a bit of cheese or a milk drink, or maybe cereal with milk last thing at night? If so, that can actually be an indicator of milk intolerance. The way it was explained to me is that it's a bit like a hangover. You don't get a hangover until you stop drinking and you don't get the milk 'hangover' until your body is milk-free. So in order to avoid that, your body keeps the milk-free time to a minimum by demanding one last hit before bedtime.

I thought that was interesting and it seems to be pretty true too! Um - it does mean that you might feel quite bad for a few days after you give up milk products though, if you are intolerant. For me it was about three days and then I woke up and felt AMAZING!
(Reply) (Parent) (Thread)
[User Picture]From: mooselover13
2012-08-18 11:13 am (UTC)
Interesting. I sometimes get into a cycle of drinking milk and still feeling thirsty, and it usually takes a few glasses before I remind myself that I need to drink water to feel sated.
(Reply) (Parent) (Thread)
From: (Anonymous)
2012-08-28 10:36 pm (UTC)
Try testing your blood type. A lot of "silly" diets actually fall under the blood type recommendations, which actually aren't that silly at all. Like think of how many people do well GF or love the Atkins diet....that is essentially the type O diet. A smaller portion, but still sizeable, say that the healthiest fruits, veggies, organic, and vegetarian or close to it...that's the second highest blood type A. I naturally found myself over to a blood type A diet and got much healthier. I'm totally a vegetarian now (BEFORE discovering the blood type stuff) and when I looked it up, read that an organic, vegetarian diet is best for type As.
To me, a blood type O diet seems miserable...mainly GF, a good amount of meat, and a good amount of vegetables but more are "not beneficial" when compared to blood type A.
I'm not a doctor or a nutritionist, but I bet if you tested your blood type, you'd be O. Then say that you are eating for your blood type (more or less staying GF) for health and potentially weight loss and people would be supportive of your healthy endeavor rather than rolling their eyes.
(Reply) (Thread)
[User Picture]From: mooselover13
2012-08-28 11:22 pm (UTC)
Sadly, I'm A+ and near as I can tell meat is just fine in my diet. Thanks for the suggestion though! It helps to have other ways to look at things.
(Reply) (Parent) (Thread)