|Soy allergy resources?
||[May. 8th, 2013|11:30 pm]
Against the grain
Hi all, I'm looking for good forums/groups/blogs/resources for a very sensitive soy allergy. We're talking can't cope with "shared facilities" warnings and seemingly reacting to things that are contaminated but not labeled as such, meaning the traces are below the legal limit for labeling requirements. |
As an example of the kind of thing I'm hoping for, for corn allergy there are several forums and groups where a ton of good information can be gotten:
Delphi Avoiding Corn Forums: http://forums.delphiforums.com/avoidingcorn
^^ frequented by very sensititive corn allergics who have been doing the corn free thing for a long time.
^^ 900 people and counting, so lots of noise, but also a lot of responses to questions
And then here a number of blogs by those who are crazy sensitive to corn with all kinds of good info on the "basics" of surviving corn free.
It's my friend who's allergic. I am somewhat soy sensitive but it doesn't seem to be that bad compared to corn for me. The Facebook Soy Allergy board doesn't seem to have a lot of people on it. I'm hoping there is somewhere on the net, somewhere, where soy allergics are all talking to each other, but Google isn't bringing it up. Anyone have any leads?
Sadly I can't suggest anything, but this is to let you know that you're being heard on this comm.
Thanks. Good to know I'm not talking to the air here.. :)
You're not talking to the air. It's just rather a quiet comm. You'd be welcome on friendly_crips
, which I own. I'm in food_allergies
because I have Irritable Bowel Syndrome and for a while, I wondered about allergy.
Interesting. Usually I hear food allergy people say, "I thought I had IBS but it turned out to be food allergies!" rather than the opposite.
Thanks! I will definitely join. I would say my corn allergy is probably severe enough to qualify as a disability considering that I react to airborne popcorn, traffic fumes (ethanol from corn), and other peoples' body products and laundry detergent.
All the soy specific forums I've visited have been virtual ghost towns. Granted I haven't made the rounds in a number of years now (this is the only allergy community I still visit) but I doubt that's changed.
Sorry I can't be more helpful. I'm air and contact sensitive to soy but no longer react to trace amounts (there was a time when I did) so I understand your friend's situation.
It's all good, sort of a shot in the dark. :) What's up with the lack of active groups, man? I can only imagine that the incidence of soy allergies has increased in recent years, not decreased.
Could there be some kind of anti-racist complexity? There's soya in many Asian foods, and in many 'health' foods based on Asian foods. Nobody (well, nobody I respect!) wants to sound anti-Asian.
That never occurred to me. I'm soy sensitive and Asian. :D
I doubt it. More the myth that soy is healthy therefore, and if it's healthy therefore it must be good for you, so we will put it in everything. Because it's good for you. Well, not so much when you're allergic to it.
I see what you mean. How could tofu be a risky food? It's low in fat and it's a versatile ingredient!
Rather as people don't like to believe that a sandwich made from delicious, crusty wholemeal bread will give me several nights of insomnia. Even though I don't have coeliac disease! How could it be true that wheat makes me ill? For years I've been saying, 'Yes it's true, for some reason.' Then I learned that IBS often involves reacting badly to insoluble fibre, which is in wheat.
Haha, when I went vegan forever ago I ate a ton of edamame, tofu, tempeh, and miso. Because it's healthy, right? That's how I discovered my sensitivity- they all gave me horrific gastric/intolerance type symptoms, and threw my hormones *right* out of whack. Last year I thought maybe I was imagining it and it was all the gluten and corn (celiac on top of the corn allergy) so I introduced organic tofu. Horrible GI syptoms, and it made me skip periods. While on hormonal birth control.
Soy is the devil.
Question for you: What items cause airborne soy reactions for you? Corn is a far worse allergy for me than soy, and popcorn and corn chips are the worst. Corn chips are fine until someone starts eating them which gets dust everywhere, but popcorn will mess up a room for me for HOURS afterwards. But on full-bucket days I have also found that being in the bread section of a grocery store and handling a closed bag of bread that has corn flour or corn starch as an ingredient will sometimes give me a little asthma and lip burning.
And did you *do* anything to help yourself become less sensitive, or did healing just sort of happen through avoidance?
I've had airborne reactions to soy flour being baked and to soy-based insulation being sprayed. (The insulation was basically three straight months of hives, fun times.) I seem to (so far) be okay with people heating up tofu or edemame products in the microwave when I'm in the room.
I'm another IBS and allergies person. I spent about 15 years with my system being very overreactive (calming for brief periods but then acting up again) - I reacted to all sorts of things and I couldn't gain weight no matter how hard I tried. Patience and careful avoidance of everything my system was rejecting let my system heal and reset. I tried various dietary interventions and nutritional supplements, but other than the probiotic (which I still take religiously) I don't think any of them made any difference. Within the last year, I've been able to finally successfully gain (and keep on) weight and to add in many foods that I couldn't tolerate before. I still have multiple food allergies, and I still have IBS, but my system is a lot more tolerant than it used to be.
Ugh, insulation??! There's corn in lots of construction materials, gypsum (drywall) being the worst offender for that. There's probably corn in some kinds of insulation as well.I haven't looked into it yet but I'll need to eventually.
See, that's the kind of thing I was hoping to find a compendium of for my friend! She's sooooo sensitive right now, I think because her thryoid is out of whack. She's also allergic to corn, and her thyroid meds were corny. She was reacting to them way too much to continue, but her endo wouldn't give her a compounding script! I think she's got an appointment with a GP who will help her out to tide her over this week- he's treating a couple other special corn allergy cases in the area so he knows the drill.
I think gut healing is important for me to do as well however I'm a but flummoxed on how to do it. My body is just rejecting most things I've put into it, including probiotics. sigh.
Anyway thanks so much for sharing your story!!