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Soy allergy resources? [May. 8th, 2013|11:30 pm]
Against the grain

food_allergies

[becala]
Hi all, I'm looking for good forums/groups/blogs/resources for a very sensitive soy allergy. We're talking can't cope with "shared facilities" warnings and seemingly reacting to things that are contaminated but not labeled as such, meaning the traces are below the legal limit for labeling requirements.

As an example of the kind of thing I'm hoping for, for corn allergy there are several forums and groups where a ton of good information can be gotten:

Delphi Avoiding Corn Forums: http://forums.delphiforums.com/avoidingcorn
^^ frequented by very sensititive corn allergics who have been doing the corn free thing for a long time.

https://www.facebook.com/groups/cornallergy/
^^ 900 people and counting, so lots of noise, but also a lot of responses to questions

And then here a number of blogs by those who are crazy sensitive to corn with all kinds of good info on the "basics" of surviving corn free.

It's my friend who's allergic. I am somewhat soy sensitive but it doesn't seem to be that bad compared to corn for me. The Facebook Soy Allergy board doesn't seem to have a lot of people on it. I'm hoping there is somewhere on the net, somewhere, where soy allergics are all talking to each other, but Google isn't bringing it up. Anyone have any leads?

Thanks!
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Comments:
[User Picture]From: sammason
2013-05-11 04:02 am (UTC)
Your blog is interesting, and sobering. Makes me think 'there but for the grace, go I!' since I'm blessed with a lack of any known allergies.

Also it's interesting to me from a scientist's point of view. I write 'Science on the Land' on WordPress http://argylesock.wordpress.com/ I've never heard of anybody here in Britain being allergic or sensitive to corn (Zea mays, known here as maize). In fact you're the first corn-allergic person I've met. Perhaps people don't often mention it.

I'm intrigued to learn from the 'Beginner's Guide to Corn Free' that you link to, that allergens in Z. mays can be carbohydrates (sugars or starches) as well as proteins. Also to learn about how many products in the States are made from Z. mays. And the suggestion that people may react to genetically modified (GM aka genetically engineered, GE) Z. mays, specifically the Bt maize which produces insecticide.

On my science blog I write a 'Crop of the Month' series which hasn't yet featured Z. mays. Perhaps it should, one of these months. I've been gestating this idea for a while. When I do get around to writing that post I'll link to your corn blog.
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[User Picture]From: becala
2013-05-11 04:52 am (UTC)
Actually the corn allergy groups I'm a member of have a few British members actually, and a couple Aussies. Relatively few. 5-10 active members out of 50+ who post regularly.

Produce seems to be much less messed with there, and a number of derivatives that are always made from corn here are often made with wheat instead. (Of course that's a problem for a wheat allergy.) But it sounds like compounding pharmacies don't exist over there? Which makes finding corn free medications very very difficult. At least here while it costs me a million dollars, I can *get* them if I need them. Mostly. Some can't be compounded due to patents or whatever.

I'm actually not one of the most thorough resources on the allergy, though I'm actually struggling to be. There was a woman who ran a blog called Hidden Corn that detailed the corn allergy hazards about every kind of food. She somehow discovered that corn wasn't her problem (but I don't know what it was and I'm dying to know!) and took the blog down because she didn't want to be responsible for making sure that information was accurate and up to date. I am reconstructing some of it with the "Corn-tamination Series" posts, however I actually talked to the author and she's going to give me her old content, including the reference links, of which she had plenty. I'll probably be putting them up on a wiki type format instead of a blog.
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[User Picture]From: sammason
2013-05-11 05:52 am (UTC)
I hope you'll announce those wikis on this comm, when they're ready.
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[User Picture]From: sammason
2013-05-11 05:58 am (UTC)
PS I'd never heard of compounding pharmacies but ehow has just told me what they are. Apparently, they do exist here in Britain http://www.ehow.co.uk/facts_6175682_compounding-pharmacies_.html
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