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Soy allergy resources? [May. 8th, 2013|11:30 pm]
Against the grain

food_allergies

[becala]
Hi all, I'm looking for good forums/groups/blogs/resources for a very sensitive soy allergy. We're talking can't cope with "shared facilities" warnings and seemingly reacting to things that are contaminated but not labeled as such, meaning the traces are below the legal limit for labeling requirements.

As an example of the kind of thing I'm hoping for, for corn allergy there are several forums and groups where a ton of good information can be gotten:

Delphi Avoiding Corn Forums: http://forums.delphiforums.com/avoidingcorn
^^ frequented by very sensititive corn allergics who have been doing the corn free thing for a long time.

https://www.facebook.com/groups/cornallergy/
^^ 900 people and counting, so lots of noise, but also a lot of responses to questions

And then here a number of blogs by those who are crazy sensitive to corn with all kinds of good info on the "basics" of surviving corn free.

It's my friend who's allergic. I am somewhat soy sensitive but it doesn't seem to be that bad compared to corn for me. The Facebook Soy Allergy board doesn't seem to have a lot of people on it. I'm hoping there is somewhere on the net, somewhere, where soy allergics are all talking to each other, but Google isn't bringing it up. Anyone have any leads?

Thanks!
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Comments:
[User Picture]From: gallian
2013-05-12 04:55 pm (UTC)
I found out it's all about corn by eliminating and having symptoms that had never been correlated with allergies or even perceived as symptoms including joint pain, heart palpitations, and difficulty concentrating disappear until corn was challenged. Challenging the other foods I tested positive for yielded no noticeable reactions.

Substitute "wheat" and you have a good part of my story. (except for the "challenging the other foods yielded no reactions" part - I'm one of the lucky multiple allergy/sensitivity people.)
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[User Picture]From: becala
2013-05-13 12:06 am (UTC)
Oh, I'm pretty sure I have multiple sensitivities as well, just none of them are *quite* as bad as corn. Though sometimes it's hard to tell what is a new allergy and what is just corn again. I was positive I was anaphylactic to coconut for quite some time until other folks from the FB corn allergy group finally started reacting to the products I'd had issues with, and I realized that no, I'm fine with coconut unless it's contaminated with CORN. *sigh*

Confirmed second allergies are to kale and chard. Soy is a definite sensitivity but if it's IgE mediated, it doesn't *act* like it. Adverse reactions for sure, but only to consumption of whole soy products, not traces and not airborne. I am possibly allergic other veggies in the same families as kale and chard such as cabbages, broccoli, spinach, beets, and quinoa (which is related to spinach), but not positive on those as they could just have been corn-taminated. I also MAY be allergic to turkey and chicken, but again, could still be corn. NO IDEA.

Honestly though, just the corn allergy is enough for me. Too much, really. Traces of it are in so many things that I ended up eating two foods for 8 weeks because I couldn't find anything that didn't make my throat close up. And even those two foods gave me throat closing/tongue burning issues, so I had to eat small amounts often.

Oh I'm a celiac too, or at least very gluten intolerant. Never pursued a diagnosis for celiac. I have the gene though.

Edited at 2013-05-13 12:09 am (UTC)
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[User Picture]From: becala
2013-05-13 12:10 am (UTC)
Oops, didn't mean to make the above an "oh poor me" diatribe. I mostly don't feel that way. I'm just constantly mulling over my symptoms trying to figure out causes. It's a full time job really. :)
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